Charmaine DM Royal
Associate Professor in the Department of African and African American Studies
Charmaine Royal is Associate Professor of African & African American Studies, Biology, and Family Medicine & Community Health at Duke University. She is also core faculty in Duke Initiative for Science & Society, governing board member of the Social Science Research Institute, faculty affiliate in Duke Global Health Institute, and senior fellow in Kenan Institute for Ethics. She directs the Center on Genomics, Race, Identity, Difference (GRID) and the Center for Truth, Racial Healing & Transformation (TRHT) at Duke University.
Dr. Royal’s research, scholarship, and teaching are transdisciplinary and global, focusing on ethical, legal, and social issues in genetics and genomics, particularly the intersection of race and genetics and its policy implications and practical interventions. She serves on several domestic and international professional committees and boards related to these topics.
Dr. Royal received a master’s in genetic counseling and a doctorate in human genetics from Howard University. She completed postgraduate training in bioethics and ELSI (ethical, legal, and social implications) research at the National Human Genome Research Institute of the National Institutes of Health, and in epidemiology and behavioral medicine at Howard University Cancer Center.
Transfusion Medicine and Hematology awarded by National Institutes of Health (Participating Faculty Member). 1975 to 2021
Understanding the Intersection of Stigma and Self-Management in Sickle Cell Disease awarded by National Institutes of Health (Sponsor). 2017 to 2020
Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities (Principal Investigator). 2017 to 2019
Public Perspectives and Experience Regarding Genetic Ancestry Testing awarded by National Institutes of Health (Principal Investigator). 2012 to 2016
Perspectives and Experience Regarding the NCAA Sickle Cell Trait Testing awarded by National Collegiate Athletic Association (Principal Investigator). 2013 to 2015
Ethics as a Guide for the Use of "Race" and Ancestry in Research and Clinical Practice awarded by Greenwall Foundation (Principal Investigator). 2009 to 2015
Royal, CDM, and FitzGerald, K. "Race, Genetics, and Ethics." African American Bioethics: Culture, Race, and Identity. Ed. ED Pellegrino. Georgetown University Press, May 3, 2007. 137-152.
Royal, CDM, and Dunston, G. "The Human Genome: Implications for the Health of African Americans." Praeger handbook of Black American health. Ed. IL Livingston. Praeger Publishers, June 2004. 757-775.
Kittles, R, and Royal, C. "The genetics of African Americans: Implications for disease gene mapping and identity." Genetic Nature/Culture: Anthropology and Science beyond the Two-Culture Divide. November 6, 2003. 219-233.
Baker, C, Powell, J, Le, D, Creary, MS, Daley, L-A, McDonald, MA, and Royal, CD. "Implementation of the NCAA Sickle Cell Trait Screening Policy: A Survey of Athletic Staff and Student-athletes." Journal of the National Medical Association 110.6 (December 2018): 564-573. Full Text
Nelson, SC, Yu, J-H, Wagner, JK, Harrell, TM, Royal, CD, and Bamshad, MJ. "A content analysis of the views of genetics professionals on race, ancestry, and genetics." Ajob Empirical Bioethics 9.4 (October 2018): 222-234. Full Text
Bulgin, D, Tanabe, P, Asnani, M, and Royal, CDM. "Twelve tips for teaching a comprehensive disease-focused course with a global perspective: A sickle cell disease example." Medical teacher (January 15, 2018): 1-7. Full Text
Christensen, KD, Uhlmann, WR, Roberts, JS, Linnenbringer, E, Whitehouse, PJ, Royal, CDM, Obisesan, TO, Cupples, LA, Butson, MB, Fasaye, G-A, Hiraki, S, Chen, CA, Siebert, U, Cook-Deegan, R, and Green, RC. "A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone." Genetics in Medicine : Official Journal of the American College of Medical Genetics 20.1 (January 2018): 132-141. Full Text
McDonald, MA, Creary, MS, Powell, J, Daley, L-A, Baker, C, and Royal, CD. "Perspectives and Practices of Athletic Trainers and Team Physicians Implementing the 2010 NCAA Sickle Cell Trait Screening Policy." Journal of Genetic Counseling 26.6 (December 2017): 1292-1300. Full Text
Ifekwunigwe, JO, Wagner, JK, Yu, J-H, Harrell, TM, Bamshad, MJ, and Royal, CD. "A Qualitative Analysis of How Anthropologists Interpret the Race Construct." American Anthropologist 119.3 (September 2017): 422-434. Full Text
Blanchard, JW, Tallbull, G, Wolpert, C, Powell, J, Foster, MW, and Royal, C. "Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities." Journal of empirical research on human research ethics : JERHRE 12.3 (July 2017): 169-179. Full Text
Treadwell, MJ, Makani, J, Ohene-Frempong, K, Ofori-Acquah, S, McCurdy, S, De Vries, J, Bukini, D, Dennis-Antwi, J, Kamga, KK, Mbekenga, C, Wonkam, ET, Tangwa, G, Royal, CD, and Wonkam, A. "Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study." Omics a Journal of Integrative Biology 21.6 (June 1, 2017): 323-332. Full Text
Wagner, JK, Yu, J-H, Ifekwunigwe, JO, Harrell, TM, Bamshad, MJ, and Royal, CD. "Anthropologists' views on race, ancestry, and genetics." American Journal of Physical Anthropology 162.2 (February 2017): 318-327. Full Text
Mulder, N, Nembaware, V, Adekile, A, Anie, KA, Inusa, B, Brown, B, Campbell, A, Chinenere, F, Chunda-Liyoka, C, Derebail, VK, Geard, A, Ghedira, K, Hamilton, CM, Hanchard, NA, Haendel, M, Huggins, W, Ibrahim, M, Jupp, S, Kamga, KK, Knight-Madden, J, Lopez-Sall, P, Mbiyavanga, M, Munube, D, Nirenberg, D, Nnodu, O, Ofori-Acquah, SF, Ohene-Frempong, K, Opap, KB, Panji, S, Park, M, Pule, G, Royal, C, Sangeda, R, Tayo, B, Treadwell, M, Tshilolo, L, and Wonkam, A. "Proceedings of a Sickle Cell Disease Ontology workshop — Towards the first comprehensive ontology for Sickle Cell Disease." Applied & Translational Genomics 9 (June 2016): 23-29. Full Text
(Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing. Claiming Kin. 9th Annual MU Life Sciences and Society Symposium. University of Missouri – Columbia. Columbia, MO. March 2013
Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait. ”. 31st Annual Education Conference of the National Society of Genetic Counselors. Boston, MA. October 1, 2012
Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. 14th Annual Meeting of the American Society for Bioethics and Humanities. Washington, DC. October 1, 2012