Charmaine DM Royal
Professor of African and African American Studies
Charmaine Royal is Professor of African & African American Studies, Biology, Global Health, and Family Medicine & Community Health at Duke University. She is also affiliated with the Duke Initiative for Science & Society and the Kenan Institute for Ethics. She directs the Duke Center on Genomics, Race, Identity, Difference and the Duke Center for Truth, Racial Healing & Transformation.
Dr. Royal’s research, scholarship, and teaching are transdisciplinary and global, focusing on ethical, social, scientific, and clinical implications of genetics and genomics, particularly for African and African Diaspora populations. She has a major interest in issues at the intersection of genetics and ‘race’, with the goal of dismantling ideologies and systems of racial hierarchies in research, healthcare, and society. She serves as an advisor on numerous professional committees and boards including the Board of Directors of the American Society of Human Genetics and the External Scientific Advisory Board of the Human Heredity and Health in Africa (H3Africa) Consortium.
Dr. Royal obtained her bachelor’s degree in microbiology, master’s in genetic counseling, and doctorate in human genetics from Howard University. She completed postgraduate training in ethical, legal, and social implications (ELSI) research and bioethics at the National Human Genome Research Institute of the National Institutes of Health, and in epidemiology and behavioral medicine at Howard University Cancer Center.
Implementation and Implications of Sickle Cell Trait Screening in the NCAA awarded by National Institutes of Health (Principal Investigator). 2019 to 2023
Tom Russell Charitable Foundation awarded by Tom Russell Charitable Foundation (Principal Investigator). 2020 to 2021
Transfusion Medicine and Hematology awarded by National Institutes of Health (Participating Faculty Member). 1975 to 2021
Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities (Principal Investigator). 2019 to 2020
Duke-Durham: One Community Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities (Principal Investigator). 2017 to 2020
Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities (Principal Investigator). 2017 to 2019
Understanding the Intersection of Stigma and Self-Management in Sickle Cell Disease awarded by National Institutes of Health (Sponsor). 2017 to 2019
Public Perspectives and Experience Regarding Genetic Ancestry Testing awarded by National Institutes of Health (Principal Investigator). 2012 to 2016
Perspectives and Experience Regarding the NCAA Sickle Cell Trait Testing awarded by National Collegiate Athletic Association (Principal Investigator). 2013 to 2015
Ethics as a Guide for the Use of "Race" and Ancestry in Research and Clinical Practice awarded by Greenwall Foundation (Principal Investigator). 2009 to 2015
Royal, C. D. M., and K. FitzGerald. “Race, Genetics, and Ethics.” African American Bioethics: Culture, Race, and Identity, edited by Edmund D. Pellegrino, Georgetown University Press, 2007, pp. 137–52.
Royal, C. D. M., and G. Dunston. “The Human Genome: Implications for the Health of African Americans.” Praeger Handbook of Black American Health, edited by Ivor Lensworth Livingston, Praeger Publishers, 2004, pp. 757–75.
Kittles, R., and C. Royal. “The genetics of African Americans: Implications for disease gene mapping and identity.” Genetic Nature/Culture: Anthropology and Science beyond the Two-Culture Divide, 2003, pp. 219–33.
Tukker, Anke M., et al. “The Impact of Environmental Factors on Monogenic Mendelian Diseases.” Toxicological Sciences : An Official Journal of the Society of Toxicology, vol. 181, no. 1, Apr. 2021, pp. 3–12. Epmc, doi:10.1093/toxsci/kfab022. Full Text Open Access Copy
Stewart, Kearsley A., et al. “"Pain is Subjective": A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries.” J Pain Symptom Manage, vol. 61, no. 3, Mar. 2021, pp. 474–87. Pubmed, doi:10.1016/j.jpainsymman.2020.08.029. Full Text
Gyamfi, Joyce, et al. “Implementation science research for the scale-up of evidence-based interventions for sickle cell disease in africa: a commentary.” Globalization and Health, vol. 17, no. 1, Feb. 2021, p. 20. Epmc, doi:10.1186/s12992-021-00671-x. Full Text
Teteh, Dede K., et al. “Genetic ancestry, skin color and social attainment: The four cities study.” Plos One, vol. 15, no. 8, Jan. 2020, p. e0237041. Epmc, doi:10.1371/journal.pone.0237041. Full Text Open Access Copy
Blanchard, Jessica W., et al. “"We Don't Need a Swab in Our Mouth to Prove Who We Are": Identity, Resistance, and Adaptation of Genetic Ancestry Testing among Native American Communities.” Current Anthropology, vol. 60, no. 5, Oct. 2019, pp. 637–55. Epmc, doi:10.1086/705483. Full Text
Bulgin, Dominique, et al. “Twelve tips for teaching a comprehensive disease-focused course with a global perspective: A sickle cell disease example.” Medical Teacher, vol. 41, no. 3, Mar. 2019, pp. 275–81. Epmc, doi:10.1080/0142159x.2017.1420151. Full Text
Baker, Charlotte, et al. “Implementation of the NCAA Sickle Cell Trait Screening Policy: A Survey of Athletic Staff and Student-athletes.” Journal of the National Medical Association, vol. 110, no. 6, Dec. 2018, pp. 564–73. Epmc, doi:10.1016/j.jnma.2018.03.004. Full Text Open Access Copy
Nelson, Sarah C., et al. “A content analysis of the views of genetics professionals on race, ancestry, and genetics.” Ajob Empirical Bioethics, vol. 9, no. 4, Oct. 2018, pp. 222–34. Epmc, doi:10.1080/23294515.2018.1544177. Full Text Open Access Copy
Outram, Simon, et al. “Genes, Race, and Causation: US Public Perspectives About Racial Difference.” Race and Social Problems, vol. 10, no. 2, June 2018, pp. 79–90. Epmc, doi:10.1007/s12552-018-9223-7. Full Text Open Access Copy
Christensen, Kurt D., et al. “A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone.” Genetics in Medicine : Official Journal of the American College of Medical Genetics, vol. 20, no. 1, Jan. 2018, pp. 132–41. Epmc, doi:10.1038/gim.2017.103. Full Text
Dula, Annette, et al. “The ethical and social implications of exploring African American genealogies.” Developing World Bioethics, vol. 3, no. 2, 2003, pp. 133–41. Epmc, doi:10.1046/j.1471-8731.2003.00069.x. Full Text
(Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing. Claiming Kin. 9th Annual MU Life Sciences and Society Symposium. University of Missouri – Columbia. Columbia, MO. March 2013
Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait. ”. 31st Annual Education Conference of the National Society of Genetic Counselors. Boston, MA. October 1, 2012
Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. 14th Annual Meeting of the American Society for Bioethics and Humanities. Washington, DC. October 1, 2012