Charmaine DM Royal
Associate Professor in the Department of African and African American Studies
Charmaine Royal is associate professor of African & African American Studies, Biology, and Community & Family Medicine at Duke University. She is also core faculty in the Duke Initiative for Science and Society, faculty affiliate in the Duke Global Health Institute, and senior fellow in the Kenan Institute for Ethics.
Dr. Royal’s research, scholarship, and teaching focus on social and ethical issues in genetics and genomics on a global scale, particularly the intersection of 'race' and genetics, its policy implications and practical interventions. She serves on several national and international professional committees and boards related to these topics. She directs the Duke Center on Genomics, Race, Identity, Difference (GRID) that aims to inform and transform the concepts, uses, and impacts of 'race' in research, healthcare, and society.
Dr. Royal received a master’s in genetic counseling and a doctorate in human genetics from Howard University. She completed postgraduate training in bioethics and ELSI (ethical, legal, and social implications) research at the National Human Genome Research Institute of the National Institutes of Health, and in epidemiology and behavioral medicine at Howard University Cancer Center.
Transfusion Medicine and Hematology awarded by National Institutes of Health (Participating Faculty Member). 1975 to 2021
Understanding the Intersection of Stigma and Self-Management in Sickle Cell Disease awarded by National Institutes of Health (Sponsor). 2017 to 2020
Duke-Durham: One Community¿Multiple Voices (Duke Truth, Racial Healing & Transformation Center) awarded by Association of American Colleges and Universities (Principal Investigator). 2017 to 2018
Public Perspectives and Experience Regarding Genetic Ancestry Testing awarded by National Institutes of Health (Principal Investigator). 2012 to 2016
Perspectives and Experience Regarding the NCAA Sickle Cell Trait Testing awarded by National Collegiate Athletic Association (Principal Investigator). 2013 to 2015
Ethics as a Guide for the Use of "Race" and Ancestry in Research and Clinical Practice awarded by Greenwall Foundation (Principal Investigator). 2009 to 2015
Royal, CDM, and FitzGerald, K. "Race, Genetics, and Ethics." African American Bioethics: Culture, Race, and Identity. Ed. ED Pellegrino. Georgetown University Press, May 3, 2007. 137-152.
Royal, CDM, and Dunston, G. "The Human Genome: Implications for the Health of African Americans." Praeger handbook of Black American health. Ed. IL Livingston. Praeger Publishers, June 2004. 757-775.
Kittles, R, and Royal, C. "The genetics of African Americans: Implications for disease gene mapping and identity." Genetic Nature/Culture: Anthropology and Science beyond the Two-Culture Divide. November 6, 2003. 219-233.
Ifekwunigwe, JO, Wagner, JK, Yu, J-H, Harrell, TM, Bamshad, MJ, and Royal, CD. "A Qualitative Analysis of How Anthropologists Interpret the Race Construct." American Anthropologist 119.3 (September 2017): 422-434. Full Text
Christensen, KD, Uhlmann, WR, Roberts, JS, Linnenbringer, E, Whitehouse, PJ, Royal, CDM, Obisesan, TO, Cupples, LA, Butson, MB, Fasaye, G-A, Hiraki, S, Chen, CA, Siebert, U, Cook-Deegan, R, and Green, RC. "A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone." Genetics in medicine : official journal of the American College of Medical Genetics (July 20, 2017). Full Text
Blanchard, JW, Tallbull, G, Wolpert, C, Powell, J, Foster, MW, and Royal, C. "Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities." Journal of empirical research on human research ethics : JERHRE 12.3 (July 2017): 169-179. Full Text
McDonald, MA, Creary, MS, Powell, J, Daley, L-A, Baker, C, and Royal, CD. "Perspectives and Practices of Athletic Trainers and Team Physicians Implementing the 2010 NCAA Sickle Cell Trait Screening Policy." Journal of genetic counseling (June 3, 2017). Full Text
Treadwell, MJ, Makani, J, Ohene-Frempong, K, Ofori-Acquah, S, McCurdy, S, de Vries, J, Bukini, D, Dennis-Antwi, J, Kamga, KK, Mbekenga, C, Wonkam, ET, Tangwa, G, Royal, CD, Wonkam, A, and as members of the H3Africa Consorti, . "Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study." OMICS: A Journal of Integrative Biology 21.6 (June 2017): 323-332. Full Text
Wagner, JK, Yu, J-H, Ifekwunigwe, JO, Harrell, TM, Bamshad, MJ, and Royal, CD. "Anthropologists' views on race, ancestry, and genetics." American journal of physical anthropology 162.2 (February 2017): 318-327. Full Text
Mulder, N, Nembaware, V, Adekile, A, Anie, KA, Inusa, B, Brown, B, Campbell, A, Chinenere, F, Chunda-Liyoka, C, Derebail, VK, Geard, A, Ghedira, K, Hamilton, CM, Hanchard, NA, Haendel, M, Huggins, W, Ibrahim, M, Jupp, S, Kamga, KK, Knight-Madden, J, Lopez-Sall, P, Mbiyavanga, M, Munube, D, Nirenberg, D, Nnodu, O, Ofori-Acquah, SF, Ohene-Frempong, K, Opap, KB, Panji, S, Park, M, Pule, G, Royal, C, Sangeda, R, Tayo, B, Treadwell, M, Tshilolo, L, and Wonkam, A. "Proceedings of a Sickle Cell Disease Ontology workshop — Towards the first comprehensive ontology for Sickle Cell Disease." Applied & Translational Genomics 9 (June 2016): 23-29. Full Text
Christensen, KD, Roberts, JS, Whitehouse, PJ, Royal, CDM, Obisesan, TO, Cupples, LA, Vernarelli, JA, Bhatt, DL, Linnenbringer, E, Butson, MB, Fasaye, G-A, Uhlmann, WR, Hiraki, S, Wang, N, Cook-Deegan, R, Green, RC, and REVEAL Study Group*, . "Disclosing Pleiotropic Effects During Genetic Risk Assessment for Alzheimer Disease: A Randomized Trial." Annals of internal medicine 164.3 (February 2016): 155-163. Full Text
(Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing. Claiming Kin. 9th Annual MU Life Sciences and Society Symposium. University of Missouri – Columbia. Columbia, MO. March 2013
Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. 14th Annual Meeting of the American Society for Bioethics and Humanities. Washington, DC. October 1, 2012
Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait. ”. 31st Annual Education Conference of the National Society of Genetic Counselors. Boston, MA. October 1, 2012